NIEUWSBRIEF JULI / AUGUSTUS 2016De nieuwsbrieven van de werkgroep autismevriendelijke mondzorg houden u op de hoogte van de( actuele) ontwikkelingen op het gebied van de mondzorg voor mensen met ASS. De nieuwsbrief informeert professionals, cliënten, ouders en begeleiders.I

Een interview
Dental Tribune staat een uitgebreid interview met Jan Elhorst (tandarts-gehandicaptenzorg) en Henk Algra (orthopedagoogen GZ-psycholoog) over patiënten met autisme “Het doel is een veilige stoel”.

Klik hier voor het interview

Een uitzending
De NPO heeft een mooie uitzending (50 minuten)gewijd aan Utta Frith in Focus op Autisme. Professor Uta Frith heeft haar leven gewijd aan onderzoek naar autisme. Ze vertet over de bijzondere mensen die ze in al die jaren heeft ontmoet en laat zien hoe autistische mensen de wereld ervaren.

Klik hier voor de uitzending

Een publicatie
Patil A, Tamgond S, Sandhyarani B, Shigli A, Patil S, et al. (2016) An Update on Dental Outlook for Autism. Autism Open Access 6:176.

Abstract Autism or autistic disorder is lifetime neurodevelopment disorder described as major impairment in mutual social interactions, communication ability, and repetitive patterns of interests or behaviors. Since, globally large number of hildren affected by this devastating disorder, dental professionals should provide oral health care with family-centered approach comprising thorough understanding of parental concern, exceptional medical conditions, and vivid behaviours of each personality patient to improve the treatment planning. This article analyses oral health status, dental needs, complications and treatment of autistic children.

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Bestel voortaan al uw boeken bij autismeshop.com en steun tegelijkertijd de NVA
De Nederlandse Vereniging voor Autisme (NVA) en Breinboek bundelen hun krachten en gaan nauw samenwerken. En dat is goed nieuws: gezamenlijk lanceren zij de nieuwe, overzichtelijke webshop: autismeshop.com. In deze webshovindt u alle (vak)literatuur op het gebied van autisme, in de breedste zin van het woord. Ook een nieuwe
roman, een boek voor de kinderen,zelfs spelletjes vindt énbestelt u gemakkelijk.

Klik hier voor autismeshop

In 2016 zijn weer diverse publicatie verschenen over mondzorg voor mensen met Autisme Spectrum Stoornis. Dit zijn steeds weer stappen voorwaarts in de zoektocht naar de beste behandelingen voor de patiënt. Hieronder de abstracts van zeven publicaties.
1. Andrade NS, Dutra TT, Fernandes RF, Moita Neto JM, Mendes RF, Prado Júnior RR. Retrospective study of dental trauma in children with autism spectrum disorders: a paired study. Spec Care Dentist. 2016 Apr 26.
“The objective was to evaluate the history of traumatic dental injury (TDI) among children with and without autism spectrum disorders (ASD) at the Centro Integrado de Educação Especial (CIES), in Teresina, Brazil. The dental records of 228 children, 114 with ASD (SG = study group) and 114 without ASD (CG = control group), paired by age, gender and socioeconomic characteristics between January 2007 and September 2014 were reviewed. Data were analyzed using chi-square test and multivariate logistic regression (alpha = 5.0%). Dental trauma in SG was lower than in the CG (24.6% and 41.2%, respectively, p = 0.007). The risk of trauma was lower among males in SG (OR: 0.35; 95%CI: 0.18 to 0.67). The likelihood of TDI in SG was 3.17 higher in females than that of males (p = 0.040). The prevalence of TDI was lower in ASD individuals compared to controls. Dental trauma was higher among ASD girls than ASD boys”.
2. Popple B, Wall C, Flink L5, Powell K, Discepolo K, Keck D, Mademtzi M, Volkmar F4, Shic F. Brief Report: Remotely Delivered Video Modeling for Improving Oral Hygiene in Children with ASD: A Pilot Study. J Autism Dev Disord. 2016
“Children with autism have heightened risk of developing oral health problems. Interventions targeting at-home oral hygiene habits may be the most effective means of improving oral hygiene outcomes in this population. This randomized control trial examined the effectiveness of a 3-week video-modeling brushing intervention delivered to patients over the internet. Eighteen children with autism were assigned to an Intervention or Control video condition. Links to videos were delivered via email twice daily. Blind clinical examiners provided plaque index ratings at baseline, midpoint, and endpoint. Results show oral hygiene improvements in both groups, with larger effect sizes in the Intervention condition. The findings provide preliminary support for the use of internet-based interventions to improve oral hygiene for children with autism”.
3. AlHumaid J, Tesini D, Finkelman M, Loo CY. Effectiveness of the D-TERMINED Program of Repetitive Tasking for Children with Autism Spectrum Disorder. J Dent Child (Chic). 2016;83(1):16-21.
“PURPOSE: The purpose of this study was to compare the effectiveness of the D-TERMINED Program with standard behavior guidance techniques (SBGTs) used for children with autism spectrum disorder (ASD) in a private dental setting.
METHODS: A retrospective data analysis was performed from records of children with ASD who received treatment using either the D-TERMINED program or SBGTs at two private dental practices. Data were analyzed using chi-square, Fisher's exact, Wilcoxon Signed Rank, and Mann-Whitney U tests and logistic regression.
RESULTS: Forty-four charts (22 in each group) were selected from office visits between 1999 and 2012. Children in the D-TERMINED group were significantly younger (P=0.01). There were no significant differences between groups regarding gender and dental care characteristics. Patients treated with the D-TERMINED program showed a significantly greater improvement in behavioral scores compared to the control group (P=0.03). Additionally, children treated with the D-TERMINED program had significantly lower referrals for dental treatment under general anesthesia (P=0.04).
CONCLUSION: The D-TERMINED program may help children with ASD learn the cooperation skills necessary to receive treatment in a dental practice, which might impact health care cost effectiveness”.
4. Zink AG, Diniz MB, Rodrigues Dos Santos MT, Guaré RO. Use of a Picture Exchange Communication System for preventive procedures in individuals with autism spectrum disorder: pilot study. Spec Care Dentist. 2016 Apr 5. doi: 10.1111/scd.12183. [Epub ahead of print]
“The aim of the present study was to evaluate the use of the Picture Exchange Communication System (PECS) in individuals with autism spectrum disorder (ASD) in order to facilitate patient-professional communication during preventive procedures. In this study, 26 patients with ASD, between 5 and 19 years of age (10±3.3 y), were divided into two groups: G1 (n = 13) with no previous experience of dental treatment, and G2 (n = 13), with such previous experience. The initial approach followed the principles of the Son-Rise Program®. The seven PECSs presented the routine of the dental office: "room," "ground," "chair," "dentist," "mouth," "low," and "triple." Each PEC was used up to three times in order to acquire the skill proposed. It was verified that G2 required a greater number of times to achieve the acceptance of PECS "ground," "dentist," "mouth," and "triple" (p < .05). We concluded that PECS facilitated patient-professional communication during preventive procedures, including for ASD patients with previous dental experience”.
5. Mathu-Muju KR, Li HF, Nam LH, Bush HM. Visualizing the Comorbidity Burden in Children with Autism Spectrum Disorder Receiving Dental Treatment Under General Anesthesia. Pediatr Dent. 2016;38(2):134-9.
“PURPOSE: The purposes of this study were to: (1) describe the comorbidity burden in children with autism spectrum disorder (ASD) receiving dental treatment under general anesthesia (GA); and (2) characterize the complexity of these concurrent comorbidities.
METHODS: A retrospective chart review was completed of 303 children with ASD who received dental treatment under GA. All comorbidities, in addition to the primary diagnosis of ASD, were categorized using the International Classification of Diseases-10 codes. The interconnectedness of the comorbidities was graphically displayed using a network plot. Network indices (degree centrality, betweenness centrality, closeness centrality) were used to characterize the comorbidities that exhibited the highest connectedness to ASD.
RESULTS: The network plot of medical diagnoses for children with ASD was highly complex, with multiple connected comorbidities. Developmental delay, speech delay, intellectual disability, and seizure disorders exhibited the highest connectedness to ASD.
CONCLUSIONS: Children with autism spectrum disorder may have a significant comorbidity burden of closely related neurodevelopmental disorders. The medical history review should assess the severity of these concurrent disorders to evaluate a patient's potential ability to cooperate for dental treatment and to determine appropriate behavior guidance techniques to facilitate the delivery of dental care”.
6. Marion IW, Nelson TM, Sheller B, McKinney CM, Scott JM. Dental stories for children with autism. Spec Care Dentist. 2016 Mar 2. doi: 10.1111/scd.12167. [Epub ahead of print]
PURPOSE: To investigate caregivers' preference regarding dental stories to prepare children with autism for dental visits.
METHODS: Caregivers of children with autism were allowed use of dental stories available via different media (paper, tablet computer, computer) and image types (comics or drawings, photographs, video). Caregivers completed pre- and postintervention surveys. Fisher's exact tests were used to determine associations between predictive factors and preferences.
RESULTS: Forty initial and 16 follow-up surveys were completed. Subjects were primarily male (85%). Mean child age was 6.7 years. Nine (64%) caregivers found the dental story useful for themselves and their child. Two (14%) caregivers found the aid only helpful for themselves. Preferred media type was associated with language understanding (p = .038) and home media preference (p = .002). CONCLUSIONS: Practitioners should consider using dental stories to help prepare families and children for dental visits. Individual preferences for dental stories vary; using prior history can aid in selection
7. Elmore JL, Bruhn AM, Bobzien JL. Interventions for the Reduction of Dental Anxiety and Corresponding Behavioral Deficits in Children with Autism Spectrum Disorder. J Dent Hyg. 2016 Apr;90(2):111-20.
“PURPOSE: Autism Spectrum Disorder (ASD) can greatly inhibit a child's communication and social interaction skills, impacting their comfort during dental hygiene treatment and services. Children with ASD may exhibit sensory sensitivities, fear of the unfamiliar and lack of socio-cognitive understanding, leading to anxiety and corresponding behavioral deficits. Since the prevalence rates for ASD have risen significantly in the past decade, increased emphasis has been placed on educational and behavior guidance techniques, which can be helpful for children with ASD because of their increased capabilities in visual-processing. The purpose of this literature review is to summarize the interventions available to reduce dental anxiety in children with ASD, and to determine which strategies are best suited for implementation by the dental hygienist. Advancements in technology and socio-behavioral interventions were assessed for appropriate use, efficacy and engagement in the target population. Interventions were categorized into the following groups: picture cards, video technologies and mobile applications”.

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